ice bucket challenge


i will not be doing the ICE BUCKET CHALLENGE.

as someone who HAS a lifelong brain condition… i am loving watching the ice bucket challenge.
RARE diseases (as we are called) are not well understood even by specialists….

and although some of the symptoms of some of the conditions can be helped by surgery ( like mine was)…and brain surgery TRUMPS your ice bucket….trust me!

they’re not CURABLE – as you can see from my in WHEELS and not in heels…crip4
PLEASE keep donating!

i have a chiari malformation…i always will



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