FATIGUE- a recovery day

 if you don’t NEED recovery days, then you probably do not understand the concept of recovery days…

this is an attempt to explain.

yesterday i was ME…i LOVED it…i performed music for a few hours.

i LOVE that…

it meant so so much to me, and to my family and friends…

it is my gift – my talent.

i can think musically…


and i am so glad i have been trusted with that gift.


Today is a RECOVERY DAY.

yes i still have my talent…BUT it is now pay-off for having that day of feeling “human”.

Yes i am still me…the crock…the chiarian.

obviously i did all the sensible things like

  • using my cane
  • sleep each day
  • sat during all my music
  • barely stood up
  • no carrying
  • took GOOD pain cocktail
  • took NO CHANCES!

so once again….I should NOT forget this is the trade-off.

a good day means a recovery day….completely upended….slower

TODAY i hurt :

  • back of head
  • ALL of head
  • pain killers during night and hours before getting up
  • back of neck
  • feet
  • legs weak
  • arms unusually weak
  • eyes tired
  • need more sleep – even than my “normal” napnap
  • headache
  • HAIR combing is painful
  • thinking is slow
  • face that pale shade of GREY.
  • blinking hurts
  • head too heavy
  • pain relief is NOT often enough
  • every cell in my body is on low power
  • need to lie down

THAT is a Chiari Malformation  – a Chiari Malformation and what it does to a life.

Am NEVER gonna love my recovery day…but at least i have no choice but RESPECT IT….

sure my brain would just turn me off!restingchiari1

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