my appointment went well!


frame this…”my neurosurgery appointment went well” 🙂

you see?

ETHICS and MEDICINE can and do mix.

and i LOVE when they do!

i LOVE the feeling that you are being seen as you are, not as you were, not as one organ, but as a composite of your symptoms.

THAT kinda well.

brain2

YES i sat last night and ( with wiki as a dictionary), I ticked nearly EVERY symptom on this sheet, but then i wrote down the most “limiting” and consistent ones:

springer

  • dizziness
  • pain
  • LEGS
  • EYES

and WHAT HAPPENS NOW?

WHAT HAPPENS FOR THE REST OF MY LIFE?

  • He is sending me to pain management.
  • Interested in my “meningitis” legs, so going to MRI spine and brain. as he wants to rule out syrinx..as i mentioned extra painful pins and needles and coldness…so is looking beyond what we have so far.
  • Referring me to a “rehab” specialist who works with some spinabifida patients of his….and the issues he wants the man to look at are similar.
  • Writing a letter to my GP – and stating my medical “condition”…and several of my main symptoms. A kinda baseline letter, and will copy me – and it will govern all knock on, incidental appointments.
  • He checked that i AM on referral lists for eye motility, optometry and ophthalmology…they just haven’t appeared at the top yet.
  • He will be henceforth in charge of me.

CLARITY!
Anyone who wants an opinion on me, can be sent to HIM… chiari7he doesn’t attempt to pretend he can FIX me.brainpieces

he describes “decompression” as tidying up the chiari for a while, but not removing it’s symptoms…they are well established!

he doesn’t NEGATE them, belittle my shitty life standard, or tell me i am over thinking, or too good on Google…

NO SMART ARSE pretence.

but he sees me as ME.

and worth as decent a life as i can have – that’s all.

NOT a jigsaw of composite symptoms.

THANK THE LORD!

alzheimers
i hugged him a wee bit 🙂

Advertisements

4 comments

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s