i am going on holiday

  1. i am going on holiday tomorrow
  2.  PETRIFIED of how my condition will respond to the flight and the whole extra effort
  3. GUILTY for all the ways i limit life for my family- so going means the world to me
  4. not able to withstand heat as part of who and how i am so will be a HIPPO – submerged to the shoulders.
  5. I used to love this. i WANT to love this… i deserve to enjoy it.
  6. drugs enough to manage and insurance to match
  7. enough swim wear and bras to clothe several girl friends…and dresses i have no idea whether they fit or not
  8. legs like balloons before we leave.
  9. assisted packages from the moment we leave the house – my first “officially disabled” holiday.
  10. i am going in no style… bad hair, stripes of pink arms and cocktails….on my scooter!




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