used to that.
something abnormal, or extra to your condition load, and you seek medical advice.
i do avoid trying to visit GP, as it is not really fair, i understand that.
but when am almost fully loaded on my drug quota for the day, and not getting to grips with pain, i go to out of hours care, there also A&E, and from there (after explaining your condition and your JOURNEY all 10 years of it to more uninformed practitioners -and AGAIN i understand this as it is a “RARE condition”)….., you are in a ward.
incredibly well treated.
ward staff ask a lot about condition.
but drug control is discussed with you.
your regional consultant is called
they detail scans, x-rays, and what to do tests.
all done and immediately send back to base and checked.
sometimes a doctor outside his specialism, thinks of a “what if we try” add on..and we do.
family come and go and i suppose the odd admission reinforces that this is a life long condition.
and i REALLY do feel grateful when i am being cred for.
i am royally treated to a day or two of rest…
and then we come to a point which i don’t YET feel comfortable with.
the part where “we” discuss and decide i should be ok to go home as i have a very good understanding of my condition. AND i do! AND i know that is a compliment!…
but…it feels STRANGE to know that HOSPITAL will no longer FIX me.
nor pretend to.
it feels strange.
that is a big statement.
but it will NEVER