at a glance thro my history i seem preoccupied by LEGS…MY LEGS
although at least recently i decided to name my wheelchair “LEGS” as the poor chair, in essence has had to replace what my legs used to do.
but i have thought a lot and worried a lot and blogged about them so much!
what kind of pain is it?
Saturday Legs Chiari style
chiari- leave me my legs please!
meningitis in my legs
I guess there is a train of thought there, a deep seeded worry, a stupid hope even that “i can manage at the level i am at- just please not any worse”.
but that DOESN’T happen.
my prayers seem to fall on deaf ears too often.
my TOES are getting worse.
Was dropped down to get my toe nails done- gel toe nail varnish issue
was having my TOE nails painted – first time since last summer.
so had to put my weight on her towelled knee -one foot at a time.
told clearly to relax and just lean all my weight on beautician’s KNEE/towel as she “Had me!”
So she started with the nail file -filed them and did prep..
-and for the first time EVER, my 3 numb/rubbery toes did not have strength to stay strong , or the right way… their KNUCKLES keep popping outward instead of up! As if had become overnight double jointed.
it was GROSS feeling for me and a bit scary as it is new.
am quite sure is a form of muscle loss?
is it another lovely chiarian dead nerve issue?
of course somewhere in mt mind i knew something would change, i knew that through last winter i had never felt sure when putting on my boots that the wee toes were lying flat and straight as they should be, as i had so little feeling in them, or messages from them.
call it what you want…
I ordered a pair of supportive sandals which my 22 year old son will definite include in what he calls my “lesbian sandals”…lol…
as opposed to wee flip flop?
it’s the lesbians every time.
THANK GOD there are still statements i love 🙂
BUT apart from that giggle, the reality scares the crap out of me.
I have emailed my NS and asked him can i do anything or if he can thing of any thing we could try…but really i know he hates this chiari too.
What is next?
my 3 numb fingers on each hand?
will my piano playing and knitting beat my decay and decline?
I am petrified.
i HATE this chiari.
and its symptoms…which keep on appearing and staying!