“ oh I love a lie-in too!”


It’s not a lie in.

It’s not a nap.

Ita not a choice.

It’s a life reduction I hate.

Due to this brain

And now I won’t feel any better for that tomorrow.

It’s brain fatigue.

Brain switch off

Brain shit down.

Sleep

17 hours a day

Sleep

Please brain.

Stop.

I can’t keep calling this life.

Ventilator

No change

I can’t manage the limitations

Not any more.

At the minute I don’t feel that awake is able to see through the brain fog.

Neurology? Just 2 more years it seems.

Pain management seems to be once in 18 months – but still waiting for follow up.

Am too tired to fight a system. Too tired.

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