I care about so many people.
I care deeply
I care about injustice.
Wrong focussed on anyone.
In my childhood I was taught empathy. To feel for others. but to me that is humanity- basically.
but I NEED care.
Now life is new. New and not good. I am now a disabled person
but I NEED care.
When that happens it’s very difficult.
I have NEEDS for CARE. That’s a different perspective.
I amCOMPLETELY reliant on being assessed for “care” by strangers.
Not by any of my doctors. But by strangers.
Ironically they are budget led – so try NOT to see needs as them care would have to be given. It’s a heinous system
Strips you of personality,
Entitlement to a life of any worth as allied medical staff assess your being able to walk, to wash….. ignoring the mortification and indeed the struggles.
I came from one assessment so dizzy I felt ill – that wasn’t on their remit even though I have a neurological condition.
I came from the washing assessment and I cried. Overwhelmed and not a shred of my modesty or dignity intact.
I am writing this tears running down my face
As i sob (silently) for the layers of injustice and the many many people who die to needing CARE must survive the “measure of care” -as I did.
which due to weakness and illness we are expected to deal with…agree with… but given VERY little independent consideration, and no DIGNITY!, Helen
It’s funny. I expect that many, many people think that having people coming in to do things for you every day must be really nice. Some may even be willing to pay quite a lot of money for the privilege. But, for a disabled person who has to rely on carers for everything it’s not always that good. I hate it.
I don’t want to sound ungrateful but having carers, personal assistants or PAs as I prefer to call them, is not the barrel of laughs you might think it is. Sometimes you just want them to all go away and leave you alone.
I don’t know about other disabled people but I seem to spend three quarters of my life explaining the same thing to the same person over and over again.
You want a cup of coffee? Even though your PA has made you coffee every morning for…
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